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| Parents and Families
Family Associations These family associations include: Family Days/Weekends - The next Family Day will be at Honey-Pot Hill Orchards in Stow, MA. The address is 144 Sudbury Road, Stow. Call 978-562-5666 for directions to the orchard. On Saturday, September 26th with a Rain date of Sunday, September 27th. Go to there web site at www.honeypothill.com/ for additional information about the orchard. This is a NEC sponsored event and each NEC registered family gets a bag of apples and a packet of materials on deafblindness and how everything (including apple picking) is part of learning and can be included in a curriculum. To register send me an email at nec@perkins.org or call 617-972-7514. We will need to know the number of people attending in your family, number of adults, number of children and all the ages of the children up to age 21. We look forward to seeing you and your family! Deafblind Resource Guide for Maine Link Maine: Link Maine provides information regarding events and services related to disabilities in the State of Maine. e-Advisor: If you are a parent or teacher of a visually impaired child, the e-ADVISOR is a web site designed for you. The e-Advisor is a collaborative project designed to facilitate communication between parents, teachers and doctors of visually impaired children. find information on eye disorders, take a virtual tour, find resources or join discussion boards. Federation for Children with Special Needs: The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. Organized in 1975 as a coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts that offers a variety of services to parents, parent groups, and others who are concerned with children with special needs. The Federation includes links to Parent Centers in other states. Maine Bureau of Rehabilitation Services State Departments of Education: Connecticut, Maine, Massachusetts, and New Hampshire
Family & Advocates Partnership for Education: The Partnership is a new project which aims to inform and education families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices Family Sign Language Program: The Family Sign Language Program for children ages of 0-3 who are enrolled in their area Early Intervention Center are eligible. This service is designed to offer families with deaf and hard of hearing children an opportunity to learn sign language and gain knowledge about issues concerning deaf and hard of hearing children and adults. Classes are free of charge to families and their childcare providers. Maine Parent Federation: The Maine Parent Federation is a private non-profit organization that provides information, support and training to parents and professionals through numerous grant funded projects. Through its projects, individuals can receive information about: specific disabilities, parenting issues, education, services, support groups and other resources available to assist families and professionals within the home, school and community. National Family Association for Deafblind (NFADB): NFADB is a national network of families who focus on issues surrounding deafblindness. NFADB advocates for all persons who are deafblind, supports national policy to benefit people who are deafblind and encourages the founding and strengthening of family organizations in each state. Special Child: This online publication provides educational resources and support to parents and caregivers of children, adolescents, and young adults with disabilities. You can read and share stories with other parents and providers, as well as locate useful resources and products. Special Child is provided by The Resource Foundation for Children with Challenges (RFCC), a nonprofit charity organization. Staff members in these centers, as well as at the ALLIANCE offices, are likely to be parents of children with disabilities or have disabilities themselves. The common experience with the families they serve results in uncommon commitment to improving outcomes and results for children with disabilities. In Connecticut call: 860-739-3089, in Maine call: 207-623-2144, in Massachusetts call: 617-236-7210, in New Hampshire call: 603-224-7005 or call the main number at 888-248-0822.
Other helpful family sites you may find useful: Project SPARKLE is a program of individualized learning that enhances the ability of parents of children who are deafblind to fulfill their roles in the development and education of their children. Through Project SPARKLE, parents will have access to information, training, and resources in their homes via DVD technology and the Internet. The SPARKLE training program is provided to parents utilizing DVD technology and supported with a Parent Guidebook and the SPARKLE web site. For additional information visit the web site. Conditions Related to Deafblindness These links have been reproduced from the DB-LINK Selected Topics page. Charge Syndrome:
Latest Research in Blindness/Hearing Loss: Research advancement
related to retinal degenerative diseases funded by the Foundation Visit http://www.blindness.org/research.asp?id=326 or view Good Morning America's coverage at www.blindness.org/audio/media/GoodMorningAmerica_08.wmv |
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